Archive | September, 2012

Meal plan and update.

30 Sep

Well, I had one good week and then have had some pretty terrible days.  But I am SO grateful for the week!  I am praying that my bad days were spawned because of a meal that I ate on Thursday.  I am pretty sure it must have had MSG and that it took it’s toll on my body for a few days.  Sick as a dog!  The fever and fatigue returned full force, as well as stomach aches.  This week will be better.  I just know it!  Here is our meal plan:

  • Sunday: Greek style quinoa salad (with grape tomatoes, kalamatas for some, and feta for some) and fruit.
  • Monday: Homemade refried beans with Spanish rice (which I will  make with no oil and with veg broth) and a green salad.
  • Tuesday:  National Night Out!  Our street corner is having a block party cook out.  So fun!  I will be having these because 1) they are good and 2) they are one of the few veggie burgers that are not only vegan, but also gluten free.  We will bring watermelon to share.
  • WednesdayVietnamese Summer Rolls, with mango and sweet chili dipping sauce for us and Hokensons.  I really like the mango in these and sometimes add avocado.  They are usually a big hit with the whole family.  Served with fruit salad.

  • Thursday: I have a night out with a few friends, so the family will have egg in the holes.  So cute that this is what they have when I am out.
  • Friday: pizza night!

YOUR TURN!  What is your meal plan for the week?

Facebook…how do we ever get off?

29 Sep

I am tired of Facebook.  I am tired of people painting what they want you to see of their lives.

I am very well aware of how IMperfect my life is.  And I’m not bothered by it.  I yell at our kids. Our house gets really messy.  I get really mad at Luck.  I am in bed an embarrassing amount.  I have to watch every bite I put in my mouth or I gain weight.  I cry all of the time because people hurt my feelings.  I get really annoyed with stupid drivers.  And I watch reality TV.

I don’t feel threatened by people who paint whatever picture they want you to see.  I just wish it was tempered by reality.  And quite honestly, I think other people do feel inadequate by what they see.  They see other people living “perfect” lives.  And they feel inferior.

I love Facebook because I get to keep in touch with friends from long, long ago that I normally wouldn’t.  Or friends who  move away.  And I love being in touch with my members.  I love hearing what they want to work in class or what they have been up to or how they liked a particular workout. I also wouldn’t want to miss pictures of friends’ lives.  And I love knowing how to pray for people.  When someone’s parent dies, I want to know.  I don’t want to find out months later.  Oh, and I LOVE when people have babies and I get to see pics!  I also love watching friend’s kids grow up.  Facebook has also connected me with other Lupus patients/chronic illness endurers.  What a life line!

But there is a flip side.  There is unnecessary complaining.  There are many FB lurkers who never, ever comment, but follow closely.  PLEASE comment if you follow!  It is a bit odd when lurkers tell me something about myself or kids and I don’t even remember we are FB friends!  Like I said earlier, I am so over people trying to tell the world how important they are by posting how busy their lives are.  WE ARE ALL BUSY!  And bragging on FB makes me wanna gag.

I am SURE I am guilty of the above things.  I am proud of the kiddos and love my hubs terribly. But never, never do I want to paint a picture that is not an accurate reflection of what is happening.

So this leads me to wanting off!  I want off!  But how? This is how I find out info about the kids’ school.  Facebook is a great way to know when someone is hurting. It is a wealth of information when I need/want to know something.  Just post and voila!  I find out about deals and specials and events and so much more!  And it is where most people request I post when I blog.  People would rather just click there than actually “follow” my blog from the site.

So my question is this:  Is this just a way of life now?  Is it something we all just take the good with the bad and move on?

I am going to cut back some.  Don’t have your feelings hurt if I don’t know what’s up.  I love you.  I really, really do.  But ugh.

Is this how everyone feels?  I have a sneaking suspicion it is.  How do you feel about FB?

Huge news about a small spot! (and a meal plan!)

23 Sep

So, about 3 years ago I noticed that I had a spot on my scalp where my part is.  It was right at the hairline.  I won’t go in to details…but it bothered me and wouldn’t go away.  I finally went in to a dermatologist. He looked at it, determined it was precancerous, and froze it off.

Within a few months, it was back.  And it wasn’t happy.  But there was not much I could do about it.  I did my best to ignore it.  But it was annoying and would bleed.  Like I said, it wasn’t happy.

Once I got the Lupus diagnosis, we realized it was just a Lupus spot.  If that first doctor had only biopsied it, he would have know that it was NOT, in fact, precancerous.  And he could have given me a head start on my Lupus diagnosis.

Being on the Lupus meds made zero difference with my spot.  Once I got off of the meds, I didn’t know if it would get worse. The fact of the matter was, it didn’t change.

Until this week.  When Lucky and I noticed that for the first time in literally years, IT IS COMPLETELY GONE!!!!!!

After this flare that has lasted a good 6 weeks or so, I needed some encouragement that my diet is actually working. And boy did I get it!  My body is HEALING!  From the inside out.  Healing!  Enough to take that spot/scab away.  I may still have flares and get viruses more often, but something good is going on in there!

So, on to what we are eating this week.  Since it is Gretchen’s cooking week and I have my bean burgers frozen, I am getting an easier week.  One more week ’til our kids are on fall break!  Woohoo!

  • Monday: Gretchen is making these vegan sloppy joes
  • Tuesday: Black bean burgers with broccoli slaw (yay for meals that I have made ahead and frozen!)
  • Wednesday: Big ‘ole pot of crockpot pinto beans with cilantro lime rice and guacamole.
  • Thursday: Leftovers or quesadillas
  • Friday: Eating out!  Yay for a night off of cooking!

What is on your menu?  Link to recipes so we can all get ideas!

 

Psalm 103:1-5

Bless the Lord, O my soul,
And all that is within me, bless His holy name.
 Bless the Lord, O my soul,
And forget none of His benefits;
 Who pardons all your iniquities,
Who heals all your diseases;
Who redeems your life from the pit,
Who crowns you with lovingkindness and compassion;
Who satisfies your years with good things,
So that your youth is renewed like the eagle.

Same song, second verse. And meal planning!

16 Sep

I almost didn’t blog today because I don’t want to sound like I am complaining.  But this flare continues, as does the residual arthritis from 5th disease (a virus).  I of course get out and do things, but the moment I walk in the door I crash.  I am hardly out of bed.  YUCK.  My body just aches and aches.  I took prednisone again this past week and it took the arthritis away completely.  Now that Luck is back in town, I went off of it again.

I REFUSE to depend on that drug.  It is toxic to the body.

I go back to discuss all of this with my rheumy on Wednesday to figure out where to go from here and to have labs drawn.  Lets all just pray that by the time I go, this will all be cleared up.  That sounds quite nice, doesn’t it?

Meal planning is kinda puny still.  Last week, Lucky was traveling.  That is why it was so sad!  But I have to admit this is only a notch better.  Physically I am no better than I was last week.  But at least I have my hubs to help with the kids.

Either way, we gotta eat!

  • Monday: This is kind of a random meal, but I am looking forward to it. Nutritious Eat’s Tomato soup (made gluten free and with veg broth to make it vegan), Pioneer Woman’s Chipotle and Lime Roasted Potatoes, and some cucumbers that I am marinating in lime juice and chili powder.  Cooking for us and the Hokensons.
  • Tuesday: Leftover vegan Romanian sarmale (cabbage stuffed with rice in a tomato bouillon) made by a sweet friend.  HERE is her  non vegan version. Here is what she wrote about adapting it for us:  I cooked the rice in water (no stock) with EVOO, garlic, green onion, S&P, parsley and tomato bouillon. I stuffed each cabbage leaf with the rice and rolled it like an egg roll, poured a little more bouillon over the rolls and baked it in a pan at 300 until the cabbage was tender.
  • Wednesday: Man this is a tough night of the week for us!  All 4 of us have somewhere to be!  I teach my 2 classes, Dani has ballet, and the Luck and Reid have karate.  Dinner will probably be bean and cheese tostadas with the fixins.
  • Thursday: Spaghetti and marina (from a jar)  and roasted broccoli.  This was on the menu last week, but we didn’t eat it.
  • Friday: Homemade pizza.  All week long we all look forward to our pizza night where we watch America’s Funniest Videos and the kids get to drink their one carbonated drink of the week (root beer with cane sugar…I’m so mean, they have to share a can!) and wine for us.  Such a relaxing and wonderful way to wind down our week.

So what are YOUR go-to meals for nights when everyone has somewhere to be?  Ours seem to be: Tostadas, vegan grilled cheese, egg in the holes, and quesadillas.  I would LOVE more ideas!!!  And please, share what you are eating for the week.  Look, I am only actually cooking from scratch once this week.  I promise you don’t need to be a chef to do this!

First, second, third, fourth…. (and a puny meal plan)

9 Sep

Fifth!

I know what I have!   The kids over the last week have both broken out in the slapped cheek rash that is characteristic of Fifth disease.  In adults, it presents as arthritis.  Which totally explains why my feet, hands, arms, and knees are causing so much terrible pain.  I take stairs like I am 80.  Teaching should be, well, interesting this week.  For some it only lasts up to a few weeks.  Others, well….lets not go there!

This virus is the reason I had that fever that wouldn’t stop last week and why I feel like I have the flu.  People who are on typical Lupus drugs are at a greater risk of the virus having complications.  So YAY for no drugs!

I did have to take Prednisone this week (for the first time in over a year!  YAY!) And probably need to be on more.  I am trying to decide what to do.  I am in a flare and have a virus on top of that flare.  This is not atypical to get a virus when my immune system is seemingly going nuts on itself.  Remember that Lupus is simply a disease in which my body can’t really distinguish good cells from back and so they attack them all, as if they were foreign and bad.  Hence the fever, fatigue, pain, etc…

So for now, I wait this out. Life is being toned down once again.  Having a chronic illness has taught me a lot of lessons I wouldn’t otherwise have learned.  I hate that I am sick all of the time.  HATE it.  But I have learned SO much. This particular spell has taught me about friendships.  Not an easy lesson.  Sometimes being sick teaches me about the importance of being home as a family.  Sometimes I learn about my worth and where it isn’t found.  I am always grateful for the things that being sick makes me learn.

So what does a girl feed her family during these times????  Great question!  Our menu is lacking in all of my regular veggies and good foods.  I am just too tired and sick to be in the kitchen much.  Here is our menu:

  • Monday:  Bean and cheese tostadas with lettuce and tomatoes (I’ll have beans on a brown rice tortilla)
  • Tuesday: Salad for me, kids will have (they are SO excited): gluten free fish sticks!  Had to  make a special trip to Whole Paycheck for these babies!
  • Wednesday: Spaghetti with marinara (from a jar) and broccoli
  • Thursday: Vegan grilled cheese
  • Friday: Pizza night.  Last week I made a nasty crust. Here is hoping I make a better one this week.

Now don’t you feel like you are fancy after seeing mine?  Please do still share!  We all get ideas for the future! It helps everyone.  🙂

The never ending fever and house projects!

2 Sep

So, I have had fever now for about 2 weeks straight.  I always know when I get it….my eyes start burning, I get sluggish, my body aches, and all I can think of is crawling into bed.  Sure, I have moments where I appear normal and do normal life things, but I am truly struggling.  My bed has such a huge indention of my body in it!  I am glad I weigh less than my husband or else I would be totally paranoid about making our mattress even more lopsided than it is!

I am going to call the doc on Tuesday to see if I can just come in for blood work.  I want to make sure that I don’t have any organ involvement.  Especially kidneys.  Plus, I have body pain all over.  I feel 80 years old.  I am praying they will let me just do a blood test and not have to wait for them to squeeze me in, which can take a super long time.  I am also toying with the idea of a small amount of Predinsone.  Just to see if that will knock it out.  But my doc doesn’t want me on Prednisone (bc of my commitment to natural healing).  So we shall see.

(update: Fever is now at 101.3 and climbing.  really wish I had a manual on what to do and really wish my doc was open tomorrow)

Feeling this crappy and trying to homeschool is hard.  Mostly, it is because when my body goes, so does my brain.  Cloudy thinking.  Poor decision making skills.  Confusion. I have been crying a lot and just overall struggling.  To be honest, this has been a dark and lonely place.

HOWEVER, I have had encouragement from so many sweet friends.  Random offers and texts have really just held me up.  Even when someone tells my mom that they follow and pray for me makes me so humbled and want to give back to them.  So thank you, dear friends!  And to the ones struggling more than me, I think of and pray for you often.  I am grateful to know what it feels like to have a chronic illness because I can better understand what you all are going through.

On to house things!!!  When we moved in to this house, we painted three rooms ourselves, as well as having our kitchen professionally done (cabinets and all). Soon after moving in, all of my health issues came tumbling in to place.  So we truly have not touched our house in 2 1/2 years.  And it needs some touching!  We have wanted to make the house feel like ours.  The problem is, I am always too tired.  I spend my weekends in bed. And Luck is busy having fun with the kids.  So NOTHING gets done around here.  And I lay in bed looking at a bedroom that I long to have make me feel peaceful.

I had dinner with a friend this week who encouraged me to just start.  To tape off the room and buy the paint.  If it takes us 4 months, at least it will get done!  Well, we did it!  We bought the paint.  I put a sample of a color on the wall as a sign that we WERE going to do this!  We changed our minds on the color that is shown in this picture.and went with the same color family, only a shade lighter.  So it won’t be quite as intense as this one.  The name of the color is even called Daydream.  Doesn’t that sound perfect for someone in bed all of the time?  Now the, ahem, LOVELY wall paper in the bathroom, ahem, will have to stay for now.  That is going to take a lot more money and time to fix. So I will continue to pretend that the bathroom is tranquil.  🙂  I will keep you posted on how the room goes. We are hoping to start taping tonight and maybe, just maybe, start painting tomorrow!  

And then there is a coffee table that my family has had for years.  We have had in in our living room all scratched up and dented.  But no longer! I was waiting until I felt better.  But guess what?  I don’t feel better!  But my kids and Luck feel great.  And while I lay in bed today, guess what they are doing???

They are painting it a beautiful charcoal gray!  It is going to look so wonderful when it is done and the kids will always be proud of painting it.  I know first hand.  You know why?  When I was little, my mom had us sit down with her in the living room and paint this VERY coffee table!  Only it was the 80’s so guess what we did???  We splatter painted it!!!  Pretty sweet, right?  Who knows, maybe someday Daniella or Reid will be painting it with their kids?  And will be mocking the charcoal gray :).