Archive | May, 2011

18 things I learned this past year.

12 May

I have had Lupus for a year now.  Here are 18 things I have learned.

  • 1.  It is possible to be sick every day and continue exercising.  Naysayers, I have done it for a year.  It is NOT easy.  But it is possible.
  • 2.  Prednisone makes me a chubbier version of myself.  I have been on it for 5 1/2 months now with no break.  Chubby wubby!
  • 3.  I can lose that weight when I get off!  I now know it is not a life sentence to be chubs and can just hang on until he takes me back off of it.
  • 4.  A whole lot of people don’t really want to know how you are doing. They only want to know if you are doing better.  Sorry, Charlie.  I don’t need to pretend I feel better so you can feel better.
  • 5.  True friends do really sweet things.  I have had random meals, gift cards dropped off, food mailed, books sent, fun stuff for the kids, and other little surprises that make my life so sweet.
  • 6.  I love eating vegetarian!  One year ago….I would have never believed it.  It is possible to eat vegetarian, gluten free, corn free, dairy free, and egg free…and still eat fabulous food.  (P.S. Thanks, God, for not making coffee, wine, and dark chocolate on that list!)
  • 7.  I have people around me who can completely take over my job, if needed.  Really, this may sound dumb.  But as a mom, it is heart warming to know that if something ever happened to me, my family can keep running.  And well.
  • 8.  Cancer really, really sucks.  No, I don’t have cancer.  But you all know by now that Sadie does and this year has taught me just how horrendous it is.
  • 9.  I can’t be in sunshine, most lights make me sick, and I can REALLY embarrass one of my kiddos with the right hat on.  🙂
  • 10.  People like to question the medicines you are on.  They like to imply they would do it differently.
  • 11.  Having a dog makes us happy.
  • 12.  I adore both pomegranates and marinara.  My love affair is still going strong.
  • 13.  It is important to get into your pj’s as soon as you step foot in the door.
  • 14.  Massages keep my body from getting injured.  Without them, I get hurt.
  • 15.  I LOVE Pilates and want to do it the rest of my life!
  • 16.  I CAN homeschool my kids 3 days a week, teach exercise classes, and continue life, despite being sick.  I can still go places when I am nauseated and have fever.  I can nap 2 times a day, and yet still keep going.  I can do all things through Christ who strengthens me.
  • 17.  I have some friendships that are closer than I ever imagined possible.
  • 18.  Life is really, really, really hard, but God is really, really, really good!

Cloudy San Diego

11 May

This year, I had the privilege (thanks to my parents for keeping the kids and frequent flier miles from Luck’s travels) to go with Luck to a conference in San Diego.  It was nothing short of awesome.

Sunny San Diego was 100% cloudy, it seemed.  Therefore, I could be outside!  What a blessing.  We ate some food that was…well, perfection on a plate.  I did a ton of research on places to go.  Between recommendations from friends, folks who have lived there, the internet, and food network, we had no misses.  I got to eat out two meals a day alone.  Then Luck and I would go eat for dinner and most days, dessert, as well. 

I took pictures of food and journaled every meal.  It is how Lucky and I roll.  So if you ever go there, let us know.  Same with Cayman.  We journaled that, as well!  Never know if we will get to go back, so we must have notes just in case!

The last day was sunny, so I would jump out in to the sun, take a pic, and get back inside. Here we are on the Midway.  It is funny looking at airplanes with a bunch of aerospace engineers.  I was quite amused with their bantering.  And they were not TRYING to be nerdy….But, well, anywho.

Me and my honey.  We were refreshed and ready to come home to the kiddos.  Thank you so much to my parents.  It was so good to be away and so good to come home.  We are blessed.

Shake it up, baby!

11 May

Make this for breakfast.  Your body will like you and and your taste buds will, too!

1/2 – 3/4 cups frozen, loose leaf spinach

1/2 cup frozen mangoes or whatever fruit your little heart desires

Hearty splash of pomegranate juice, 100%…not some cocktail (a little goes a long way)

2 Tbsp almond butter

1 – 2 tsp Vanilla extract

Enough almond milk so that the smoothie actually blends in to a liquid.  This one I just keep adding while the blender is going until it is the consistency I like.  MAYBE 3/4 cup?

Blend and enjoy!!  It will keep you full and give you lots of vitamins to start your day out right!

New meds, self inflicted pain, and a spa

1 May

“Okay, you are off Methotrexate.  Consider that over.  You can’t live like this”  Yay!  But wait, now what?

Now I am on a new medication.  It is a very potent drug that stays in your liver for 2 years.  I don’t believe it is prescribed lightly b/c of the side effects.  But the hope is that the side effects are better than the negatives of Lupus.  I almost laughed out loud as I was perusing Whole Foods looking for the most natural and best ways to eat and live.  It just feels odd to do that then come home to take a drug that is potent and can mix quite dangerously with the drug I just stopped taking last week.  Oh, and I don’t even want to admit how many pills of different things I take each day.  Totally embarrassing.  I am like an 80 year old!

He also told me that I can’t get off steroids yet. Boooooo!  5 months of those boogers and I am ready to leave them behind.  But we will reevaluate in a few months and see if I can stop them.  In the meantime I go in for blood tests to make sure my liver can handle it.  Main side effects are stomach related.  Nothing new here!

Life has not been easy lately.  I have not had a day free of stomach aches and mental confusion and all of the other junk in SO long.  Honestly, I can’t even remember what it feels like to not be sick.  I look like I am my normal self.  I keep up an outwardly normal life.  But I don’t do this to deceive.  It’s my life and I want to do as much as I can to love my family well, love my friends well, keep my body healthy, and hang on for it to be free from this disease.

I am keeping up with all of my classes.  Doc is happy for me to keep exercising.  He is just so wonderful.  Every time I talk to him, he just makes me feel NORMAL!  My latest oddity is that I find myself regularly pushing in on my body deep, deep into my muscles until it hurts.  I clench my jaw, as well, until it hurts.  He reassured me that it was just a way for my body to relieve pain.  By inflicting it.  Odd, right?  So he wants me to get MASSAGES!!!  And they are covered by insurance!!!  So sad for me, huh?!?! 🙂

One more thing: I got a new job!  I am still at Gold’s, of course, but am now teaching a Pilates class at a fancy, schmancy spa on Thursday mornings after the kids are in school.  So good for my body, and maybe I will even get a discount?  A girl can dream!

Last random note, we have taken our entire house gluten free. If you know anything about gluten, you may know that going gf means literally every bit of gluten needs to be gone.  So we are going there.   We made homemade gf cinnamon rolls today. SO delish.  (did YOU know having cinnamon rolls does not mean a stomach ache??  Because honestly, I thought everyone had one after eating those!). None of us miss gluten one bit.  Some day I will share recipes for vegetarian and gf foods…and even ideas for teaching kids to cook and yummy other things.  Today, I rest and take care of the things right in front of me.  Like these sweet 3 people 🙂

1 May